WHAT IS CFIDS?

Houston CFIDS Welcomes You

Please register in our member section to obtain full access to the website. If you would like to be added to our informational, inspirational, and humorous email list please contact me at info@houstoncfids.org or junglejane1426@att.net and add these emails to your contact list.


What is CFIDS/CFS/ME? Chronic Fatigue and Immune Dysfunction Syndrome, or CFIDS, is a debilitating and complex disorder characterized by profound fatigue that is not improved by bed rest and that may be worsened by physical or mental activity. Persons with CFIDS (known as “PWCs”) most often function at a substantially lower level of activity than they were capable of before the onset of illness. In addition to these key defining characteristics, patients report various nonspecific symptoms, including weakness, muscle pain, impaired memory and/or mental concentration, insomnia, and post-exertional fatigue lasting more than 24 hours. In some cases, CFIDS can persist for years. The cause or causes of CFIDS have not been identified and no specific diagnostic tests are available. Moreover, since many illnesses have incapacitating fatigue as a symptom, care must be taken to exclude other known and often treatable conditions before a diagnosis of CFIDS is made. CFIDS is also known as Chronic Fatigue Syndrome (CFS) and Myalgic Encephalopathy (ME). Because of the trivializing nature of the name “Chronic Fatigue,” there is now a movement underway in the US to change the name so that it more accurately reflects the complexity and severity of the condition.

Effective January 1, 2010 Houston CFIDS Association we will become an email and phone only group. PLease contact me for  individual support,  information, or to be added to our email list via

info@houstoncfids.org or junglejane1426@att.net

713.682.2883

Thank you all for the support shown me the last 2 ½ years. I regret not completing my original mission. If you would like to run the association, everything is easily transferable.

Wishes for a wonderful new year with final inspirations:

We must be willing to get rid of the life we’ve planned, so as to have the life that is waiting for us. Joseph Campbell (or as I say create a new normal)

Have patience with all things, but chiefly have patience with yourself. Do not lose courage in considering your own imperfections but instantly set about remedying them – every day begin the task anew. Saint Francis de Sales (or as I say love yourself, defend yourself, and fight the bad guys)

CFIDS/CFS teaches patience and perseverance

These items would still help run the group: A variety of items keep things running so any items or expertise sent my way would be most welcome, Currently everything is personal except the copier:

  • back-up system for computer – min. requirement of back-up – 2.20GHz, 448MB ram I use my home computer now with no back-up so if it dies so does the group
  • Multi-function or laser paper for use with laser printer
  • Fine quality letterhead paper and matching envelopes to solicit and inform doctors, researchers, etc about CFS and our group
  • A membership to Sam’s Club or inclusion on one’s own card
  • Laptop computer with accessories with wireless card if possible (web-accessible, PowerPoint, Office, etc. capability) (new, used, refurbished) for presentations at meetings and speaking engagements
  • MS PowerPoint projector new, used, refurbished
  • MS PowerPoint software
  • Attorney to serve as legal adviser for Houston CFIDS regarding disclosures, 501(c)3 reinstatement, etc.
  • CPA to serve as financial adviser for budget, cash watchdog (audits), etc.
  • Physician to serve as medical adviser
  • Volunteers to attend and present prepared material at networking, chambers of commerce, association meetings, etc.
  • Volunteers (PWC’s plus healthy and dependable family, friends, neighbors)
  • Grant writer
  • Writers of articles for CFIDS website
  • All-in-one Laser Printer >>Received!

Mail donations to:

Houston CFIDS Association, 1426 Chantilly Lane, Houston, TX 77018-4131

100% of donations go directly to operating costs (website and domain), promoting the association, and informing the public about CFIDS

For donations remembering a specific occasion (birthday, anniversary or to honor a loved one), we will be happy to send a card to the honoree or their family advising them of your donation. Please include the person’s name and address when you send your donation.

Many thanks in advance!