ABOUT US
We are an independent group composed of diagnosed CFIDS/CFS/ME patients (PWC’s), patients with related disorders such as Fibromyalgia or Lyme Disease, physicians and non-patients such as family members, care-providers or friends of patients.
The purpose of the Houston CFIDS Association is to:
- Acquire research and other information pertaining to CFIDS and related disorders for presentation via meetings and our website
- Form an emotionally supportive network for CFIDS sufferers, their care-providers, family and friends
- Actively pursue research funding
- Educate the medical community and general public about the debilitating often life-altering nature of CFIDS
We are an independent organization managed entirely by volunteers. We hope to be applying for start-up grants shortly, but currently our only source of funding is contributions. Group membership in the past averaged 80-90 people, all of whom have CFIDS and/or Fibromyalgia, support those with CFIDS, have/had Lyme disease, Fibromyalgia and other disorders related to CFIDS .
The group meets on the 1st Saturday of every month from 11 a.m. to 1 p.m. except for holidays and room unavailability. ALL are welcome at all meetings, feel free to participate in any or all meetings. Each meeting follows a consistent, but casual, format.
All meetings are informational in nature with a member, physician, attorney or other speaker consisting of 15-30 minutes of information followed by Q&A followed by “how can we help you” during which PWC’s may ask for help coping with a specific issue like energy, work, pain, etc.Click here for meeting location information and details.
Meeting topics and details will be announced through email or on this website. Eventually we hope to present meetings via web-casts so even those who are home-bound will be able to participate.
We offer a variety of information to help CFIDS sufferers. Contact us through our information line 713-682-2883 or by email at info@houstoncfids.org.