Communicating with Others

July 15th, 2007

It’s well-known that one of the most frustrating things about our condition is the fact the we generally appear to be fine - though we and anyone who knows us are well aware that this is far from the truth.  It can help to have a couple of phrases in one’s pocket to help convey to others how what we really experience, what’s really going on.   Do you have some that work?  Email us - we’d all love to hear it!

General

  • “Its like have the flu 24/7/365” or “Its like having the flu all day every day all year” - Jane

Brain Fog

  • It’s like you feel when you’re waking up from anesthesia.”  - Mary

Fatigue

  • “It’s neurological, on the continuum of paralysis as opposed to ‘being tired.’” - Lisa

Posted in Helpful Hints

One Response to “Communicating with Others”

valmark – August 5th, 2007 at 5:39 pm

General
It’s like wearing one of those lead aprons used by dentists when you get x-rays. Imagine wearing it all day, everyday.

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